My name is Tom Walker and I am the  father of 3 children,  Tiffany, 19, Joey, 17 and  Tommy 16.   Tiffany and  Joey both have C.F. Tommy does not. The first  time we found out about  C.F. was when Joey was  diagnosed.  He was about  18 months old.   I'm happy  to report that both Tiffany  and Joey are doing  wonderfully and are very  healthy. Neither of them  has had to spend the night  in the hospital.

Tiffany  One reality about having children with a deadly disease is it effects the entire family. Tiffany is now a sophomore at Rim High and is doing very well She Hope's togo into Respiratory Care she was 16 in the picture below

Joey   We feel very lucky to have such healthily  children. Both boys are in Little League and  Tiff is in softball. I believe that  living in the  mountains along with   praying a lot  and trying not to worry too much are some of the reasons I am blessed with  healthy kid Joey Is also attending Rim High and is in Wrestling this is a more recent picture of Joe and Tom

My son,                                                Tommy was staying over  at a friend's house and the  friends mother went to buy  a Lotto ticket.   On  returning she asked each kid what they would do if  they won the lottery.   One  boy said he would buy all  the candy he could. Another said he would buy  his family a new car.  When it came to Tommy's  turn he spoke right up and  said, "I would give all the  money to C.F. so they can  find a cure and save my  brothers' and sister's  life".  Out of the mouth of babes. Tommy  Loves his Brother and sisters and Is always trying to help in raising money for CF Today.

 The CFF:

1) financially supports 114 CF care centers which are located at teaching and community hospitals throughout America and provide high quality specialized care for persons with CF.

 2) funds its own network of 12 CF Research Centers throughout North America.

 3) provides a variety of grants to scientists to conduct CF research.

4) supports clinical trials at CF care centers to test new drug therapies.

5) offers informational publications on a variety of subjects including CF research updates, health insurance, and financial assistance programs.

6) supports CF research, medical care public policy and education programs with the help of over 250,000 volunteers. These volunteers are part of the CFF's 70 chapters and branch offices across the country. For more information call 1(800) FIGHT CF and they will provide telephone numbers for a chapter office of the CFF near you, if you would like to become a volunteer or get more involved with the CFF in any way. The national office can also provide educational materials on CF for patients and families. You may also call this number to subscribe to the Commitment, the CFF's national newsletter.

 "We are each of us angels with only one wing, and we can fly only by embracing each other." -- Lucian de Crescenzo

Links TO CURE
Souther California's CF Chapter

What is CF  M. Quinton of the University of California at Riverside found that the ... finally explained

What Causes CF

 Cystic Fibrosis Foundation

 Comprehensive Area with a multitude of Information
  Mailing Address:  6431 Arlington Road, Bethesda, Maryland, 20814

 CF SUPPORT GROUP LINKS
65roses.com

 A listing of CF support groups worldwide

      Kids Health

 Kids Health is an award winning site that is entertaining for kids and loaded with useful information.
CF FUNDRAISERS

 A place to post your fundraiser or find out about other fundraisers.
 CF Info Area
 
 

     Excellent source for information. A sounding board for individuals with CF.

  Back to Home Page
 

[ Next Page | Random Site | Skip It | Sites List ]